Introduction to Vaginal Cancer in Teens
Being 14 is hard enough, let alone in the middle of a public health crisis. So when Liliana “Lili” Castaneda began experiencing strange symptoms in the spring of 2020, her local doctor chalked it up to “pandemic stress.” But things only got worse — and it wasn’t all in her head. Liliana “Lili” Castaneda began experiencing signs of a rare vaginal cancer at just 14 years old. Courtesy of Liliana Castaneda
A Teen’s Search for Answers
Castaneda woke up on her 14th birthday to a splotch of red in her underwear. “I was happy at first because I thought it was my period,” she told The Post. The eighth grader had never had one before. She was born with Turner’s syndrome, a genetic disorder that causes underdeveloped ovaries, infertility, delayed puberty and, often, the absence of menstruation. Seeing the blood, she said, gave her a small flicker of “hope.” The menstrual cycle can be significantly affected by stress. KYNA STUDIO – stock.adobe.com
Initial Symptoms and Misdiagnosis
But the bleeding didn’t stop, and days stretched into weeks. “It just continued and got heavier,” Castaneda recalled. At its worst, she was soaking through a menstrual pad every 10 to 15 minutes, overcome by waves of dizziness whenever she stood up. “At that point, I was anemic,” Castaneda said. “I was very tired, had no energy.” Her doctor said the bleeding was likely linked to the emotional toll of the pandemic — with school having moved online and her father recently testing positive for Covid-19. But Castaneda couldn’t shake the feeling that something more serious was going on. “It couldn’t just be stress,” she remembered thinking. “It felt like it had to be something more.” Castaneda pushed for answers for six months before receiving her diagnosis. Courtesy of Liliana Castaneda
Diagnosis and Treatment
Castaneda’s doctor told her to call back in a week if the symptoms continued. When she did, the young teen was prescribed birth control to help stop the bleeding. “It lowered it, but the bleeding didn’t go away completely,” she said. “I was worried, scared, nervous.” The spotting dragged on for five more months. Her doctor ran tests but found no answers. Then, during an ultrasound, something showed up inside her vaginal tract, and the physician asked if she had possibly left a tampon in. “I didn’t even use tampons,” Castaneda said. She was referred to a specialist, who performed a pelvic exam and took a biopsy of her vaginal lining. Shortly after, Castaneda was diagnosed with clear cell carcinoma of the vagina — a rare form of cancer usually found in the reproductive systems of postmenopausal women. A biopsy revealed that Castaneda had clear cell carcinoma, a rare form of vaginal cancer. Courtesy of Liliana Castaneda
Cancer Treatment Challenges
Signs of the disease can include abnormal bleeding between periods or after menopause, as well as pain and urinary issues, according to Northwestern. “It was shocking,” Castaneda said. “I was scared, but I was more relieved I had answers.” Unfortunately, the challenges weren’t over. Because her cancer wasn’t considered pediatric, Chicago-area children’s hospitals wouldn’t accept her. She also needed a provider who could communicate with her Spanish-speaking parents. Eventually, Castaneda landed at Northwestern under the care of Dr. Dario Roque. “In my 15 years of practicing medicine, she’s the youngest patient I’ve treated for clear cell carcinoma,” he said. Language barriers complicated Castaneda’s cancer battle. Courtesy of Liliana Castaneda
From Patient to Nurse
The tumor on Castaneda’s cervix was roughly the size of a golf ball, according to Dr. Jonathan Strauss, her radiation oncologist at the Lurie Cancer Center. “At the time of her diagnosis, the tumor was too large for us to surgically remove it, so we had to use external and internal radiation therapies to help shrink it,” he explained. “It took a lot of radiation to get rid of her tumor, along with chemotherapy.” Fortunately, the bleeding that Castaneda had experienced for months stopped after the first round of treatment. In total, Castaneda endured 30 rounds of radiation and five rounds of chemo — with Taylor Swift playing in her headphones throughout. Castaneda underwent treatment at the Lurie Cancer Center in Chicago. Courtesy of Liliana Castaneda
Life After Cancer
She was officially declared cancer-free in March 2021, nearly a year after the bleeding began. “I was so relieved,” Castaneda said. “I was grateful. I was excited.” Now 19, Castaneda is in college studying nursing, inspired by the medical team that helped save her life. “I can’t wait to become a nurse and help other kids navigate their medical journey,” she said. Castaneda is also on a mission to spread awareness about the signs of clear cell carcinoma — and to empower women to speak up when something feels wrong. “Don’t be ashamed,” she said. “Never brush anything off. Just get it checked.”
Conclusion
Liliana Castaneda’s story highlights the importance of seeking medical attention when experiencing unusual symptoms, even if they seem unrelated to a specific condition. Her bravery and determination to find answers have inspired many, and her mission to spread awareness about clear cell carcinoma will undoubtedly help others. It is crucial to remember that vaginal cancer can affect anyone, regardless of age, and being proactive about one’s health is essential.
FAQs
Q: What is clear cell carcinoma of the vagina?
A: Clear cell carcinoma of the vagina is a rare form of cancer that typically affects postmenopausal women but can also occur in younger individuals.
Q: What are the signs of clear cell carcinoma?
A: Signs of the disease can include abnormal bleeding between periods or after menopause, as well as pain and urinary issues.
Q: How is clear cell carcinoma treated?
A: Treatment for clear cell carcinoma usually involves a combination of surgery, radiation therapy, and chemotherapy.
Q: Can clear cell carcinoma be cured?
A: Yes, clear cell carcinoma can be cured if detected and treated early.
Q: What can I do to reduce my risk of developing clear cell carcinoma?
A: While there is no guaranteed way to prevent clear cell carcinoma, maintaining a healthy lifestyle, avoiding risk factors, and seeking regular medical check-ups can help reduce the risk of developing the disease.
