Thursday, October 2, 2025

Living Life to the Fullest

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Living Life to the Fullest

Born with Down Syndrome, Portia Robles is fighting leukemia. The ten year old was told in August she had two weeks to two months left to live.

A Life of Joy and Sass

Portia is the most joyful sweetest little girl, she is full of sass, but that keeps her strong,” said her mom.

A Community Comes Together

Multiple organizations have stepped forward to help give Portia once-in-a-lifetime experiences, gifts and events. Here are just a few of the moments from her memory book:

  • Legoland New York (courtesy of the Catie Hoch Foundation)
  • ‘Best Day Ever’ camping trip (courtesy of Maddie’s Mark)
  • Raindancer Dinner (courtesy of Logan Strong Foundation)
  • Disney World in 2019 (Make-A-Wish)
Creating Unforgettable Memories

Portia’s story is a testament to the power of community and the importance of living life to the fullest. Despite the challenges she faces, she is surrounded by love and support, and is making the most of every moment.

Conclusion

Portia’s story is a reminder that even in the darkest of times, there is always hope and always something to be grateful for. We are inspired by her strength and resilience, and are grateful for the opportunity to share her story.

FAQs

Q: What is Portia’s condition?
A: Portia was born with Down Syndrome and is currently fighting leukemia.

Q: How has the community responded to Portia’s situation?
A: Multiple organizations have stepped forward to help give Portia once-in-a-lifetime experiences, gifts and events.

Q: What are some of the experiences Portia has had?
A: Some of the experiences Portia has had include visiting Legoland New York, going on a ‘Best Day Ever’ camping trip, having a Raindancer Dinner, and visiting Disney World in 2019.

Q: What is the prognosis for Portia’s condition?
A: Portia was initially given a prognosis of two weeks to two months to live, but with the help of treatment and support, her condition is being managed and she is continuing to live life to the fullest.

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