Young Cuban Boy’s Fight Against Rare Condition

Introduction to the Condition

After months of waiting, a young boy from Cuba battling a medical condition is getting a second chance at life after he and his family received a visa to travel to South Florida for treatment.
Damir Ortiz was diagnosed with type 1 neurofibromatosis, a rare genetic condition that causes tumors on nerve tissue.

The Journey to Treatment

On Wednesday, he arrived at Nicklaus Children’s Hospital after his family obtained a humanitarian visa.
"What emotion, I’m shaking, I’m as cold as ice," his mother, Eliannis Ramirez, said in Spanish.
The news came last Friday that after months of medical complications and setbacks, Ortiz would be allowed to travel to the U.S.
"Damir woke up and wanted to pull out the tube. I told him I was going to take him to the land of toys because he says the U.S. is the land of toys, but it’s the country where he’ll be saved," his mother said.

Overcoming Financial Barriers

It wasn’t easy or cheap to get Ortiz to Miami. More than $45,000 was raised in less than 24 hours for his transportation.

The family’s determination and the generosity of donors made it possible for Damir to receive the treatment he needs.

Current Status and Treatment

The family said Ortiz is on a ventilator, waiting for his respiratory system to recover and his lungs to improve.
At Nicklaus Children’s Hospital, Damir will have access to specialized care and treatment that is not available in Cuba.

Conclusion

Damir Ortiz’s story is a testament to the power of hope and determination. Despite the challenges he and his family have faced, they remain optimistic about his chances of recovery. The treatment he receives in Miami will be crucial in improving his quality of life, and his family is grateful for the opportunity to give him a second chance.

FAQs

What is type 1 neurofibromatosis?

Type 1 neurofibromatosis is a rare genetic condition that causes tumors to form on nerve tissue.

How was Damir Ortiz’s trip to Miami made possible?

More than $45,000 was raised in less than 24 hours to cover the costs of his transportation to Miami.

Where is Damir Ortiz receiving treatment?

Damir Ortiz is receiving treatment at Nicklaus Children’s Hospital in Miami.

What is the current status of Damir Ortiz’s condition?

Damir Ortiz is on a ventilator, waiting for his respiratory system to recover and his lungs to improve.